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  • A Different Light – 29th March 2025 – “ Lessons to be learned on how we respond to our most vulnerable ”

    A Different Light – 29th March 2025 – Lessons to be learned on how we respond to our most vulnerable

    An eleven-year-old girl with Autism. Non-verbal. Handcuffed. Admitted to a Mental Health Facility under the Section 29 of the Mental Health Act. Misidentified. Injected with two doses of anti-psychotic medication.

    These are some of the sound bites you might have heard reported in the media over the last week. By themselves they paint a fairly gritty picture, but when you put them all together in context, they map out a horrendous scenario of organizational failure.

    As you have probably heard an eleven-year-old girl was detained in Hamilton after the police received an emergency call that a woman, who seemed to be intoxicated, was trying to climb the rails of the Fairfield Bridge. She was later misidentified as a 20-year-old woman who was missing and was subject to Section 29 of the Mental Health Act. It took 12 hours for the mix up to be discovered, when the girl’s mother contacted police about her missing daughter.  During that time, she was admitted to a Mental Health Facility and injected with anti-psychotic medication. It’s hard at this time to determine who exactly is responsible for what went so badly wrong. The police have had to manage an almost impossible job of being the first responders to a wide range of mental health, drug and alcohol related incidents for some time.  When you throw neurodiversity into the mix, it’s another layer of nuanced responses that police need to be au fait with. Hardly something taught at Police College. This incident should be a frightening catalyst for New Zealand as a society to reflect on how we respond to our most vulnerable in their times of need.

    Peter Boshier, who recently retired from being the Chief Ombudsman in NZ, has used the opportunity of his retirement to communicate clearly with New Zealanders about the State of the Nation. Unlike the Winston Peter’s version, Boshier was focused in on the vulnerable layers of society who he had seen let down by public services over the period of his tenure.   In various interviews Boshier reemphasized previous concerns about the treatment of the elderly, prisoners, children under Oranga Tamariki, and mental health patients in New Zealand. He also released a list of concerns about the Official Information Act.  He told Morning Report that the Act was still fit for purpose, but it was the attitude of agencies that needs to change. He said “The real issues are not with the law. They centre on ‘culture’ and that involves trust, behaviour and leadership. Bad behaviour undermines the OIA.” I feel the same sentiment should be used as a lens to look at how such an incident could have been avoided. While policies and procedures may have been followed correctly, (and we don’t know this at this stage) we need to look at the organisational cultures involved. As Dane Dougan of Autism New Zealand commented,   “ … at the end of the day it all comes down to a lack of understanding of autism , and how autistic people try to communicate at times.”

    Dougan’s advocacy for first responders to have training and education in this area, seems a glaringly obvious need.  The police took the girl to the Waikato Hospital and from there it seems things only got worse.  Thinking about organisational culture, some questions need to be asked of the choices then made, was there any real focus and effort put into formally identifying her? Was there an obvious need to handcuff her? Was there any urgency to administer intravenous psychotic drugs? Why were Ministers not informed until two weeks after the event? Why is this hospital the same one that mental health advocate, Jane Stevens’ son disappeared from in 2015, only to be found dead. When she talks about how the police and health systems failed her son, Nicky, the poignancy of this event ten years later is heart-breaking.

    I know it’s all very well to ponder these questions, in hindsight, and that in the heat of the moment people do the best they can at the time. But when the system is charged with enabling its workers to support a vulnerable person in precarious circumstances, these workers need to feel adequately trained and backed up.  How well are the workplace cultures they are immersed in supporting them to do these critical jobs?

    Let’s hope this is examined in the investigations surrounding this shocking case.

    Jonny Wilkinson is the CEO of Tiaho Trust – Disability A Matter of Perception, a Whangarei based disability advocacy organisation.

  • A Different Light – 15th March 2025 – Stung by memories of a phobia

    Downloadable version:  A Different Light – 15th March 2025 – Stung by memories of a phobia

    When I googled “black wasps”, some sites said that they were large. Some said they were tiny. Another website it said they very rarely stung humans. It was then I knew I had the wrong wasp.

    Last weekend, I climbed out of our pool feeling that invigorating freshness one gets when one plunges in cool water. I do miss the beach but getting down to it was getting harder and harder. When we lived in Ruakaka I used to be able to drive onto the beach in an old 4-wheel drive Suzuki until vehicle access to Ruakaka Beach was severely restricted, thwarting my access to the sea. Back to the pool. As my wife lay back on a recliner, I opted for a sturdier and more upright wrought iron outdoor chair. As I looked up to the cloudless sky, I saw what looked to be a black mason bee coming towards me. I nonchalantly batted it away with a backhander. But the critter made a bee line for my finger and a sharp pain instantly ensued. Bastard! Another one appeared and an even sharper pain erupted on my hand. Suddenly, they were swarming around me. I started yelling hysterically. Sally, my wife came over and heroically grabbed me, herself getting stung in the process. We went back into the house as quickly as possible, which was not that quick. It was traumatizing. The pain from the stings seemed to increase every minute.

    I have a bad history with wasps. I remember when I was 7 years old, a large wasp landed on my hand and repeatedly stung it. This made me spasm so rigidly that I could not knock it off. My mother eventually came to the rescue. The memory of the incident remains crystal clear.

    Then when I was around 11, I remember my brother sadistically squirting a wasp which was in the grass with a water pistol, while I cautiously observed some distance away. Out the blue, the wasp flew up and made a direct bee line for me. Back then I could run (after a fashion), but the wasp was quickly gaining on me, when my mother slapped it away with a Women’s Weekly magazine. Even though I escaped a stinging the memory still haunts me.

    Then there was the spa pool wasp attack in Onerahi, where unbeknown to me a wasp nest was under construction under the spa pool switch. When I turned on the switch I got stung and then chased into the bedroom and into the bathroom with the vindictive swine in hot pursuit. Again, back then it was Sally to the rescue.

    Every time I see a wasp I go into panic mode; some people say that wasps smell fear- that they are triggered by human adrenalin and attack accordingly. It’s the same with dogs. I have somewhat of a phobia around potentially fierce dogs, such as Pitbulls, Dobermans, Ridgebacks, hell even Staffies can make me twitch somewhat. They too can smell fear. It’s a perpetuating syndrome.

    However, the latest incident was not a result of my hysterical wasp phobia. On closer inspection the wasps had been busily building a nest under the very wrought iron chair I was sitting on. It hasn’t done much for my wasp phobia. I will be looking very carefully where I sit in future. Black, red or yellow as Shakespeare once advised, “if it appears waspish best avoid the sting”.

  • Help us recognise Tai Tokerau accessibility heroes!

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    At Tiaho Trust, we believe that a society that values accessibility and enhances the participation of disabled people is one that will thrive. Inclusive businesses, organisations and accessible tourism not only support the disabled community but also strengthen economic growth and community wellbeing. That’s why we’re launching a survey to identify, celebrate, and improve accessibility across Northland.

    ? Accessibility survey

    What is this survey about?

    We want to hear from disabled people, their whānau, carers, and support networks about the places in Northland where they feel truly welcome. Our goal is to:

    • Identify businesses, community spaces, and tourism locations that prioritise accessibility and inclusion.
    • Gather insights on areas for improvement, ensuring that more spaces meet the needs of the disabled community.
    • Recognise Northland’s most inclusive places—showcasing the businesses and organisations that go above and beyond in making their spaces accessible and inclusive.
    • Encourage businesses and tourism locations to be accessible by educating them of the economic benefits of being accessible.

    Why Your Voice Matters

    By sharing your experiences, you are helping shape a more accessible and inclusive Northland. Your insights will not only celebrate the businesses and spaces that are getting it right but also encourage others to improve their accessibility standards.

    Have your say! The accessibility survey only takes 5 minutes to complete. By participating, you’ll go into the draw to win a $200 grocery voucher. To take the survey, click the link below:

    ? Accessibility survey

    Together, let’s highlight Northland’s most accessible places and continue building a community where everyone belongs.

    Man in a wheelchair on top of a hill looking out to the sunrise

     

    #AccessibilityMatters #InclusiveNorthland #DisabilityFriendly #AccessibleTourism #SupportDisabledPeople #InclusionForAll #CommunityWellbeing #NorthlandBusinesses #AccessibilitySurvey #DisabilityAdvocacy #TiahoTrust

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  • A Different Light – 1st March 2025 – “Navigating Accessibility challenges on family trip to Fiji”

    A Different Light – 1st March 2025 – Navigating Accessibility challenges on family trip to Fiji

    We had a fantastic time! Yes, it was hot, mindbogglingly so. My distant childhood memories, of my country of birth- Fiji, returned.  We just had a five-night family holiday there and while we all had a beautiful time, international travel always throws up challenges and pleasant surprises when accessibility is involved.

    Starting at Auckland airport, we were proactive in notifying Fiji Airlines that I was taking my mobility travel scooter as check-on luggage. They replied by asking a barrage of questions about the specifications of the scooter which we duly responded to. Lo and behold at check-in they started to ask exactly the same questions. Luckily (and here is a good tip for anyone traveling with a mobility device), we had the foresight to have a copy of the scooter specifications with us, which we were able to produce with a flourish. I was then asked to hop on an airport wheelchair which was for some reason branded with ‘Breast Cancer Awareness”. It was bright pink with a double parachute type of seatbelt arrangement which the airport assistant insisted on buckling me in with. The moment the seat belts were buckled on I could feel the dignity and mana leaching out of me. After a couple of hours of being pushed around the airport it was time to board. Because the gate was the furthest away (at least 2km) in the whole airport,  we were offered a ride in a multi-seated buggy with a flashing light and a loud siren- like warning system which ferried my wife and I to the gate. From there it was back into a pink wheelchair, back on with the parachute seat belt, down 30 meters to the aircraft and then I shuffled sideways and upright down the aisle to my seat.

    At Nadi airport when I was reacquainted with my mobility scooter, I relished the independence of being able to scoot around mindlessly until we clambered aboard a mini bus for a 2-hr trip to our resort. As sugar cane fields, coconut palms and the occasional wandering livestock flashed past us, things became subtly familiar.

    The resort was huge, somewhat older, with spectacular gardens, towering coconut palms and enormous frangipani trees everywhere. The accessibility was okay, and while sometimes I needed to take the long way around in order to access a lift, to circumnavigate stairs, the vast majority of things were within reach. After five nights of eating and drinking and celebrating my moko and wife’s birthday it was suddenly time to go home. The grim reality of going home started with waking up at 2.30am to catch the 2hr bus ride at 3.30am to get to the airport by 5:30am.

    I was just about to relinquish my mobility scooter into the check-on luggage and resort to an airport wheelchair (not pink this time), when an Airport Supervisor appeared. He asked if it would be easier for me to use my mobility scooter right up to the aircraft and have it checked on at the last minute.  What a relief! I was able to saunter around duty-free freely. When we went to board the plane there were six other people in wheelchairs. Apparently there was a cruise contingent coming on board the flight.

    When we arrived in Auckland we were asked to wait by the plane while they retrieved my scooter from the luggage. Forty minutes later we were the last people waiting and an alien scooter was brought up to us. Lo and behold, (again!)  I didn’t have the only red scooter on the checked in luggage. Another half an hour later my trusty steed arrived.

    Travels always have their hiccups and curve balls. When one has access needs one has to be somewhat more resilient and patient. You will get there, try and enjoy the ride, even if it is in a bright pink Barbie style wheelchair!

    Jonny Wilkinson is the CEO of Tiaho Trust – Disability A Matter of Perception, a Whangarei based disability advocacy organisation.

  • A Different Light – 15 February 2025 – “Disability reforms could hinder true progress”

    Downloadable: A Different Light – 15 February 2025 – Disability Reforms could hinder true progress

    When the Government announced changes, restraint and cutbacks for the disability sector in March and September last year, the disability community was outraged. One of the elements of the announcements that was particularly inflammatory was that there was absolutely no consultation. Now the newly minted DSS unit (Disability Support Services) within the Ministry of Social Development are embarking on a review of the assessment process and the rules for Flexible Funding. This time there is widespread consultation.

    The consultation model they are using is a bit like Assisted Consultation. There is a discussion document that proposes the types of changes they are looking at making. Admittedly there are opportunities for open ended input to be able to put forward alternative ideas. However it is quite focused on the proposed options. While these options on the surface appear to be a measured approach there are areas of concern about how these options are implemented. One of these proposals is to have outcomes that would be imbedded in Individual Plans that are developed through the Needs Assessment Service Coordination process. One of the questions in the discussion document is “Do you have any suggestions on how flexible funding can be used to allow disabled people and carers as much choice, control and flexibility as possible, while still providing transparency and assurance the funding is being used effectively, and is supporting outcomes?

    The underling inference for this is that people may have to achieve their outcomes in the future in order for their supports to continue in the same fashion. It suggests that there should be a component of progression and improvement in the plan that is developed after an assessment that outlines how funding is to be used. If that is the case it’s quite a medical modelled approach in that it tries to fix the disabled person’s impairment rather than a social model of disability approach. This approach’s intent is to make a disabled person’s environment less disabling through providing appropriate supports. A lot of the time a person’s impairment is a consent component in their life or can fluctuate. It’s similar to an ACC plan where people are asked to set goals to monitor their rehabilitation from an injury. It’s not comparable to a permanent disability.

    Another proposal they are seeking feedback from is the notion that Individualised Funding through Flexible Funding will only be available to use to purchase services or supports from contracted Service Providers. The whole point of Individual Funding and Flexible Funding was to put the disabled person and their whanau in control of who would be providing their supports and how they wanted the support to be. The proposal states that there would still be an advantage to using Flexible Funding in this way but it’s hard to imagine what those advantages would be. In some parts of Tai Tokerau there are no Service Providers at all.

    While this consultation round is somewhat prescriptive there is still the opportunity for open ended feedback. I encourage the disabled community to actively engage with this feedback and to think about how their supports can be delivered that supports their specific needs and lifestyle. Information on this consultation round can be found on the DSS website which is www.disabilitysupport.govt.nz

  • A Different Light – 1 February 2025 – “Accessible tourism offers untapped potential”

    A Different Light – 1 February 2025 – Accessible tourism offers untapped potential

    This week the newly minted Economic Growth Minister Nicola Willis announced changes to visitor visas, allowing visitors to work remotely for foreign companies whilst in New Zealand.

    It’s to attract ‘digital nomads’ -people such as IT specialists and social media Influencers, who would be allowed to work here remotely for as long as they are not receiving any income from New Zealand sources.

    These changes will apply to all visitor visas, including tourists and people visiting family, and take effect immediately.

    Visitor visas can be extended for up to nine months, although the Minister warned that working in New Zealand for more than 90 days could require them to declare themselves as a New Zealand tax resident. The Digital Nomad initiative has been designed primarily   to boost tourism. As we all know, the kiwi tourism industry was badly affected by the closure of our borders during the Covid-19 pandemic and is still nobly trying to “bounce back”, a phrase that our tourist industry must be heartily sick of! It is a nifty market to target, but here is an even niftier one.

    The accessible tourism market. Now don’t all roll your collective eyes and think “Oh no! Here he goes again!” Might not be as sexy, but accessible tourism does make sound economic sense. Normally when tourism strategies are being developed (particularly in New Zealand) the people involved tend to stick stubbornly to the market analysis of visitors by country of origin. I am yet to hear about any tourist market analysis based on the age of visitors. The fact is that tourists who are seeking an accessible holiday experience are usually the older traveller. Makes sense when you recall that 50% people over the age of 60 have a disability of one sort or another, that  the majority of those are mobility impairments.

    Worldwide stats tell us that approximately 20% of travel enthusiasts are aged 65 and older. This group often has more leisure time and disposable income, enabling them to embark on extended bucket trips. Their financial stability allows for longer and potentially more luxurious travel experiences.  Treasury should be rubbing their hands together, because this makes the older tourist a very lucrative market segment. It is a big one too because it’s global. This market voraciously seeks an accessible visitor experience- often as a die in ditch essential.

    The cruise ship Industry realised all this yonks ago. Cruise lines have recognised the growing demand for accessible travel and invested significantly in ensuring their ships can cater to a wide range of physical, sensory, and cognitive needs, making them a leading option for inclusive travel. Cruise ships not only provide an accessible environment- their staff are highly trained to give exceptional customer service to people with impairments.  The cruise Industry has not gone to such lengths to be nice, or out of some kind of quest to improve their ethical image. No, no, no! They have done this  to cater for this lovely,  lucrative global tourist market, globally worth $168.6 billion in 2023 (and it was then still recovering from Covid!).

    Nearly a decade ago Tiaho Trust invested a considerable amount of time and resource into putting together a plan to make Northland a desirable place for visitors both domestic and international, to have an accessible experience in Tai Tokerau. In order to do this, certain things need to be in place, accessible travel from Auckland and around the region, accessible accommodation and accessible offerings for people to engage while they are here. All of these components need to be articulated in an effective marketing campaign.  Northland has fantastic potential for this to happen, with its warmer climate, exquisite scenery and authentic cultural encounters. At the time our plan didn’t get much traction with our local tourism industry. It was just after the global financial crisis. Later I reflected that perhaps we were just ahead of our time. Last year, three councils, the Whangarei District Council, the Far North District Council, and the Northland Regional Council (let’s not mention the Kaipara District Council) adopted the Tai Tokerau Regional Accessibility Strategy. A strategic plan that addresses all the components needed to make Tai Tokerau an inclusive destination for the, lets call it, quite sexy global tourist market. I mean who wouldn’t want to see me in an Panama hat and open neck Hawaiian shirt ?

    Jonny Wilkinson is the CEO of Tiaho Trust – Disability A Matter of Perception, a Whangarei based disability advocacy organisation.

  • A Different Light – 18th January 2025 – “New Year’s Eating Resolution – Discovering the power of the plant”

    A Different Light – 18th January 2025 –New Year’s Eating Resolution – Discovering the power of the plant

    Well, I hope you are having a Happy New Year, dear readers.  As I write this, I’m still acclimatising to harsh reality of being back at work after 3 weeks of R & R. Once again it is time for New Year’s resolutions. Our good friend Helen came to stay for a few days to help welcome in 2025. She has been on a healthy eating kick and inspired us to listen to a podcast called ZOE, which comprises highly enthusiastic, scientifically driven likeable nerds explaining the latest research on nutrition. In my younger years, healthy living was a very low priority for me. A healthy diet was even lower. But now, as I approach the age of 60, quicker than a runaway bobsled to hell, one’s ability to bounce back from injury or illness a very elongated process, thus health is becoming a major priority. When you throw disability into the mix, good health is an even more desirable pursuit

    Leading up to New Year’s Eve, we had a very nonchalant approach to our diet. Ham was a reoccurring theme, as we purchased a customary yuletide sized ham. We had ham quesadillas, whores’ pasta with ham, ham fried rice and Ernest Hemmingway inspired fried ham and eggs, not to mention the occasional frittata with, yes, ham.

    After listening to the ZOE podcast, I was particularly inspired by an episode on the 30- plant challenge. It focused on the importance of eating a variety of plant foods that are important for the community of bacteria that lives in one’s gut. It also went on to talk about the importance of polyphenols, which are responsible for the colours of many plants, and have antioxidant and anti-inflammatory properties.

    Initially I thought the idea of eating 30 different plants in one week would be arduous, to put it mildly. I love to cook, but I’ve always been preoccupied with various meat dishes, whether it be Fijian curry, souvlaki, pulled pork, braised beef cheeks and a recent obsession with beef chow main. However, after listening to the podcast which went to great lengths to explain the complex combinations and interactions of plant, fibres, phytochemicals and proteins, and the way they interface with our digestive system, I became more open minded to the concept of 30 plants a week.

    I then went a step further and downloaded an eBook, entitled “How to eat 30 plants a week”, written by Hugh Fearnley-Whittingstall of River Cottage fame. His book enthusiastically outlined the excitement of using different nuts, grains, spices and herbs in cooking. Before I read his book, I found him vaguely annoying in his TV series where he strives to be self-sufficient in a culinary sense, foraging and single handily farming in that nerdy English plummy way. Now I’m sold, using his recipes to embrace the diversity plant life offers.

    So instead of being so focused on meat, I’m taking a literal leaf out of Hugh’s book when he says “the difference between pork and beef is notable of course, and the difference between lamb and mullet more so, but it’s nothing compared to the difference between a leek and a walnut, a parsnip and chilli or an apple and a coriander seed”.

    We have been lavishly mixing an array of unlikely plant bedfellows together for breakfast, lunch and dinner since then. Radishes sit rustically alongside delicate raspberries, who share the plate with earthy macadamias. And that’s just to start the day!  As we virtuously nibble away and diligently record our 30 (+!), we are aware that we are in a kind of false vacation reality. Will we sustain our noble nibbling once we are both racing out the door and wearily arriving home? Will I resist the lure of the fried lasagna topper for a lunchtime fill up? Time will tell, as with all resolutions, but until then I will ward off what I can with the Power of the Plant.

    Jonny Wilkinson is the CEO of Tiaho Trust – Disability A Matter of Perception, a Whangarei based disability advocacy organisation.

     

  • A Different Light – 21st December 2024 – “Challenges and hope for disability sector”

    A Different Light – 21 December 2024 – Challenges and hope for disability sector in 2024

    Well, my dear readers, here we are at the end of 2024. It’s been a year of discontent with the occasional ray of hope. Let’s take a look back and see what the year brought us through the lens of ‘A Different Light’.

    In February I wrote about my history of breaking my ribs in an assortment of unlucky anecdotes. I’m sure some of you would have rolled your eyes and thought “here come the old war stories” as the theme continued through the year.

    March brought with it a grim proclamation from the Government about restrictions on disability support funding and , in particular, flexible funding.  I used to think disabled people had a free pass in certain areas. I thought we benefited from some sort of unwritten societal codes. That we were safe from attacks from various quarters, such as politicians. Well, Penny Simmonds the ex-Minister of Disability Issues certainly broke that code this year when she dog whistled the disabled community by accusing us of spending Individualised funding on lottery tickets, smokes and grog to try and justify the restrictions. Little did I know, there was more to come.

    April trotted out another personal war story. Vasculitis. My legs looked terrible. They looked like they had been chewed and befouled by a pack of zombies. My wife was away that day at Auckland University. My daughter was staying over to support me. When I asked her to come over and stay, she replied, “sure Dad so as long as we don’t end up in the Emergency Department like the last time I stayed over”. She took one look at my legs, took a photo of them and stealthily sent the photo to my wife. Sally rang me straight away and verbally down the phone, frogmarched me to the Emergency Department.

    In June I naively wrote about the Government budget, insinuating that the disability sector didn’t do too badly.  How wrong I was!

    In July, I was shocked when I heard that an elected councilor wrote an expletive-laden rant to a neighbouring council in which he asked: “What the f**k are you r******d, s***** c   c***s doing?”. These words are so antiquated that some people on X (formally known as Twitter) have asked what the ‘s’ word was, including erstwhile Seven Sharper, Hilary Barry.  So, for those of you, who maintain a modern obliviousness like Hilary, the ‘s’ word was ‘spastic’ and ‘r’ word was, yes, unbelievably ‘retarded’. Personally, I find the word ‘spastic’ repulsive in a toe-curling way. Even when it’s articulated by a medical professional, I flinch, let alone a local body politician trying to make himself heard.

    The month of August was brought to us by the letters W T & F.  The Coalition Government announced plans to strip Whaikaha, the Ministry of Disabled People, of its responsibility for delivering support services,  shifting it to the Social Development Ministry. Enabling Good Lives was put on hold indefinitely. The NASC’s were given the mandate to stay within indicative budgets and residential facilities were frozen not just in terms of pricing but in actual numbers of people in them. This took the disability sector backwards 15 years in one foul swoop.

    In September, I was excited by the prospect of an accessible Northland, not only because this would go a long way to make our region non-disabling, but by the potential economic benefits to the region. Having a region that is accessibility connected through both transport and infrastructure, would enable us to become a desirable destination for tourists who are seeking an accessible experience. While the Northland Regional Council, the Whangarei District Council and the Far North District Council accepted the strategy, the Kaipara District Council said yeah nah and noted it.

    The month of Halloween gifted me yet another “old war story”. I nearly gave myself a permanent Halloween costume.  I had been fixated on making pulled pork, using Jamie Oliver’s one pot wonder pulled pork extravaganza recipe. His first instruction was to turn your oven on to “full whack”, which I dutifully did.  I then spent the next hour fiddling around making a trivet of onions, apples and sage and rubbing a large pork shoulder roast with spices. By this time the oven was hotter than the Devil’s arse. When I attempted to put the roast in the oven I toppled over and nearly did a face plant on the searingly hot oven rack.

    In November the formal apologies to the survivors of abuse in state and faith based care, prompted me to do a historical reflection of the treatment of disabled people in care, post 1999. In September 2008, the Social Services Select Committee concluded its inquiry into the quality of care and service provision for disabled people. The inquiry was prompted by concerns raised in the media about two major residential service providers and by more generally expressed dissatisfaction with current service provision. The report from the enquiry covered instances of abuse. One of the report’s recommendations was to “appoint an appropriately funded lead agency with responsibility for disability issues, accountability for the disability sector, and a role monitoring the sector”. I believe this eventually led to the establishment of Whaikaha Ministry of Disabled People which was effectively dismantled two years later (in August) by the Government.

    In December we celebrated the International Day of People with Disabilities with the disabled community strutting their stuff in the Whangarei Xmas parade where we were warmly welcomed and cheered on by the public in the crowded main streets of Whangarei. And so from me to you  – thank you to my readers, whether faithful or intermittent- I wish you all an inclusive Christmas and a diverse New Year.

    Jonny Wilkinson is the CEO of Tiaho Trust – Disability A Matter of Perception, a Whangarei based disability advocacy organisation

  • Ruakaka Surfability Day – 15 February 2025

    As at 3 February there is only a couple of spaces left for participants to enter! We are in need of volunteers, without you we can’t host this awesome event, please register your name, downloadable forms below. 

    Each year Tiaho Trust host a Ruakaka Surfability Day giving youth and  people with disabilities an opportunity to “Catch a wave” in a safe environment. This event is very popular and we always have maximum amount of participants, so it is important to get your registrations in early. We can only host this event thanks to professionals like Tutukaka Surf, Waipu Learn 2 Surf, Ruakaka Surf Lifesaving Club and heaps of volunteers giving their time to ensure that everyone is safe and have fun. If you would like to register as a participant or volunteer then download the documents below. A big thanks to Corrin & Luke from Anchor who have continually sponsored this event for the last 10 years!

    To do this you can download the following:

    Flyer: Flyer – Poster Ruakaka Surf Day 2025

    Participants registration form: Participants Registration form 2025

    Volunteers registration form. Volunteer Registration Media Consent Form 2025

  • A Different Light – 7th December 2024 – “ Celebrating inclusivity at the Santa Parade”

    A Different Light – 7th December 2024 – Celebrating inclusivity at the Santa Parade

    It’s that time of year when déjà vu kicks in with a vengeance, as we divide ourselves into two distinct camps: the Christmas Geeks and the Christmas Grinches. The Geeks are those people who seem to emerge from their storage closets covered in tinsel by mid-November, while the Grinches spend December muttering things like “It’s just a day,” and “I refuse to listen to Mariah Carey one more time.”

    First, let’s talk about the Christmas Geeks (I must admit I fall partially into this camp). These folks live for the season. They start their gift shopping around September, and buy presents for nearly everyone who comes into their orbit from work colleagues to the rubbish collection crew. They always host Christmas Day at their house and mail out Christmas cards despite the diminishing postal service. Tradition is the Geek’s guiding star.

    On the other hand, we have the Christmas Grinches—people who view the season with suspicion and disdain, like an unwanted invitation to a glitter-covered cult. To them it’s a commercial rout, that manipulates antiquated traditions for mercenary outcomes.

    For Grinches, tradition is something to be subverted. Roast turkey? Too dry and too hot for summer, why not opt for a frozen pizza and a store-bought pasta salad? Work Xmas do? They’re washing their hair that night. Decorations? Really! Putting them up just to take them down. Secret Santa? They don’t need another piece of old tat

    Personally, I like hosting Christmas day to the wider whanau. There are certain traditions that I follow zealously.  Like forcing my sons-in-law to drink drams of whiskey as we start to prepare, at least two different large roasts of meat. The cooking and preparation are a mammoth effort and so is the clean-up. Last year my wife started a new tradition and forced me to sing a duet of Fairytale in New York by the Pogues in front of her extended family. By the time I came to sing I was feeling a little bit worse for the wear. I remember our audience of extended family looking perplexed and somewhat nervous!

    In the aftermath of every Xmas, we vow to break tradition next year and have a small, quiet day, grinch-like. Speaking of breaking traditions, usually Tiaho Trust celebrates the International Day of People with Disabilities (IDPD) by hosting an event with performers on the day. This year we thought we would change things up. One of the goals of celebrating the IDPD is to hold the event in a public place where the wider community can see us, proudly celebrating the day. This year we decided to see if we could join in the Whangarei Xmas parade organised by Kelly Jelavich of the Whangarei Santa committee. We approached her and she was graciously enthusiastic. She even agreed that Santa Claus would say “Merry Xmas everyone Ho, Ho, Ho!”, in NZ Sign Language. We reached out to see who would like to be involved and we were rewarded by a richly diverse array of participants. There were wheelchair users, there were mobility scooter riders (including moi with my red cowboy style Santa hat with, yes, a flashing light), there were people from the Deaf community and people from Down Syndrome support. We had our local boccia campion Troy, who bought a humungous potable speaker with him and a range of people from neurodiverse backgrounds. I really didn’t know what to expect on the day, I arrived mentally and emotionally prepared for the event and open to “what would be would be”. Soon after the parade got in motion, I realised what a big event it was. All of a sudden, we were moving slowly through a corridor of people who were cheering and waving with genuine enthusiasm.  Each time we passed through a particularly condensed portion of the crowds the volume of cheers went up! Feeding us with collective positive affirmations that we were part of the wider community and that we were participating and above all else we were valued. What better way to celebrate the International Day of People with Disabilities than to be part of a festival event that embraced the concept of being inclusive. Thanks Kelly and to the Whangarei community – whether Xmas Geeks or Grinches- thank you.

    Jonny Wilkinson is the CEO of Tiaho Trust – Disability A Matter of Perception, a Whangarei based disability advocacy organisation